Well thank you to everyone.... we were able to get the genetic testing done. We had it taken in March. They had to draw blood from Harper, myself, and Brian. We should know within the next month of the results. Since I knew it would be a while I didn't really think about the results, but now that I know that I could get a phone call any day now I'm starting to get nervous. Brian and I have also come across the idea that Harper might be Austistic. We are not 100% sure and we will wait to meet with the neurologist to ask him, but when I was reading Parents magazine it was talking about SPD and Autism. Harper fit most of the check boxes. Lack of communication, she doesn't initiate eye contact with others, she HATES to have her hair touched, and her nails clipped, she doesn't ever express hunger, and she likes to flitter her fingers across her face to see the stimulation, etc. I'm just so ready to have a diagnosis so whatever she has whether it be Autsism and/or a genetic syndrome I can be proactive and start doing everything I need to do for her to help her be more successful!
I know whatver the results are that we are a strong happy family and we can get through anything. It definitely gets tough to not ask God, "Why?" But I have to remind myself that God's plans are better than my dreams.
We have been so pleased with Harper! She is continuing to have physical therapy and speech therapy. She started to wave bye-bye and blows kisses. She also runs, climbs, jumps, marches and is NON-STOP! Talk about a work out chasing her everywhere!
Unfortunately with Harper being almost two and non-verbal she is starting to have some temper tantrums so we've been trying to find the "right" way to deal with those. Her school, Children's Courtyard, told me about two weeks ago that they felt like they weren't meeting her needs because of her temper tantrums. Side Note- Harper has really bad temper tantrums at school and not at home. She will have some tantrums at home, but they are not as intense as they are at her school.
So they had myself, her pediatrician, and her teacher fill out paper work to send to corporate to make sure they were "meeting her needs." Her pediatrician was shocked when I brought Harper in to talk to him to have the paperwork filled out. Her therapist was shocked that that the school even brught this up as an issue. Well I just found out Friday that they are NOT meeting her needs to they told me I had two weeks to find somewhere else for her to go. Hearing that as a mother is heart breaking and all I could do was hug and squeeze my precious Harper. Her doctor and therapist were shocked at this news and didn't feel like her needs weren't met. Harper's therapist also said it was a blessing that Harper is no longer there, because if they feel like they can't meet her needs then she shouldn't be there. I want Harper to be at a school where they love her and they will work their hardest to see her succeed and do well.
So the negative turning into a positive is that when Harper was 3 months old I put her onto the waiting list at First Baptist Kids Academy (this school shares the same parking lot as the school I teach in.) Well the day after Harper's school told me the horrible news, I called First Baptist and they told me they had her on the list to start in the Fall. Woo Hoo! My prayers were answered! I also told them about Harper and her developmental delay, her lack of speech, her tantrums, and how she will have two therpists coming to school to work with her and they were very responsive and they said it will not be a problem. :)
Then problem #2, now I have to find a place for Harper to go this summer for two days a week to keep her around other children and within a structered environment. Well I found this other church, Community Baptist, two miles away from our house, that has a Tuesday/Thursday Mother's Day Out program for June and July. Yay!! I also have Harper signed up for Summer swim lessons, gymnastics, art class, and a music class for once a week. We will definitely try to stay busy and active!
Now it's just the waiting game for the gentic results and for the doctor's diagnosis. Sending prayers up to God and positive thoughts!